Well, I told myself that I was going to write more. But I guess that didn't happen! Just keeping up with daily stuff can get a little overwhelming for me at times!! Its part of being a special needs parent. Sometimes your to do list is much longer than that of a "neuro typical" parent.
So let's see, what is new that has been going on?
We are currently remodeling our family room which in part is my work space or studio. Since working outside the home is difficult for me and most parents of handicapped children, I need to relie on what I can do. And that is for the most part art, doll making, and doll clothes. On top of trying to get back into writing and illustrating.
One of the things about having a family member who is a wheelchair user is that you will find carpet is not friendly. Yes, I know its toasty warm on your toes in the midst of cold winter mornings. But heck its the most pain in the neck thing to clean when it gets dirty!! I have had people tell me that carpet hides the dirt! Yes, it hides it. But the dirt is still there. And for me that is not good enough. I've become somewhat a germ-a-phobe. It happens when you have a child with a comprimised immune system. Can you imagine wearing a piece of clothing and not ever washing it? I think carpet in the same manner. Vaccuming just sucks SOME of the dirt out, but doesn't clean it. And furthermore, with a child in a wheelchair every time we have bad weather am I going to keep her stuck in the house? Wheels on wheelchairs bring in dirt and I don't need to be constantly shampooing a carpet cause it has mud tracks across it. Needless to say, we have rid our home of nasty carpet and replaced the flooring with either floating wood laminate and ceramic tile. I love it!! With the family room being the last room to finish up!! YAY!
Two weeks ago we met with the Dynavox rep during one of our visits with the speech pathologist and we are now getting the Maestro for Baby Girl. Awesome device!! With an autistic child sometimes there is not much that grabs thier attention. But this device held her attention for a full hour and a half!! If your a parent of a child who is non-verbal Dynavox may be something you want to check out! We are quite excited that Baby Girl is getting one and we hope that it opens up a great deal of opportunity for her!
Lastly, my book Stephanie's Story: Love Knows No Handicaps will temporarily be unavailable. My contract with my publisher is expiring and I did not renew my contract. I am however, planning on republishing the book myself and will be bringing it back!!
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