Well, another conference is apon us. We leave tomorrow and head out to South Carolina for it. Looking forward to seeing families that we saw two years ago, as well as meet new ones. Last year's conference brought in just over a hundred families from all over the globe.
One of the key things about the conference is that we parents get to learn something new. Whether it be communication, trusts, caregiving, and the opportunity to connect with other like families whose children who have Phelan-McDermid Syndrome.
We've spent the day getting ready for our trip. Since taking trips is not the norm for us. We have to pack more so than the average family. Making sure we have all of Baby Girl's foods since she can't eat from other places due to her severe food allergies. Making sure we have packed her dvd library, and of course, the portable dvd player. By far that has been a great investment!! Since she is on the autism spectrum her attention span is very limited. Unless of course its one of her favorite videos, she'll give it all her attention. Even at dinner time, the player will sit on the table going. I know some parents may frown apon that. But with a child like her, its either that or have her be frustrated. And with frustration comes alot of her cranking.
Well, its off to pack some more!!
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